Paul R.Harmatz, MD, is Professor in Residence, Department of Pediatrics, University of California San Francisco and UCSF Benioff Children’s Hospital Oakland. He is the Medical Director of the PediatricClinical Research Program in Mucopolysaccharidoses (MPS) and Related Disorders. Dr. Harmatz completed his Pediatric internship and residency training at Harbor-UCLA Medical Center. Following a clinical and research fellowship in Pediatric Gastroenterology and Nutrition at Massachusetts General Hospital, he remained in Boston until 1992 as faculty in Pediatrics at Harvard Medical School. During the last 20 years, Dr. Harmatz has participated in clinical trials with MPS I, MPS II, IIIa, IIIb, IVa, VI, VII, and has managed clinical care for patients with MPS living in northern California.

Dr. Yin-Hsiu Chien is a Clinical Professor at the Department of Pediatrics at the National Taiwan University, Taiwan, and an Attending Physician of the Department of Medical Genetics and Pediatrics at the National Taiwan University Hospital. She undertook pediatric residency training, and completed her fellowship in Pediatric Allergy, Immunology & Rheumatology before then completing her fellowship in Medical Genetics and Metabolism, all at the National Taiwan University Hospital. She participates in research on Pompe disease, focusing especially on the early diagnosis and the improvement in the treatment. She is the director of the Newborn Screening Center at the National Taiwan University Hospital, which routinely screens around one third of new-born infants in Taiwan.

Virginia Tsai is the Founder of the Taiwan MPS Society and a devoted mother to a son with MPS II. After her son’s diagnosis, she transformed from a full-time homemaker into a passionate advocate for MPS patients. A graduate of National Taipei University with a degree in Sociology, she is also the Founder and Chair of the Asia Pacific MPS Organization and a Director of the Light Up Your Life Foundation. She focuses on patient care, medical rights advocacy, and helping develop patient groups across Asia. Over the past three decades, she has built a strong support network, promoted public awareness, and influenced healthcare policies in Taiwan. Virginia’s unwavering love for her son and her courage in facing adversity continue to inspire and bring hope to MPS families across Asia.